save mitchell

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The test of time.

Our last post was on November 15. Here’s what has happened since then.

November 16. I completed my half marathon in honor of Mitchell. The best part was going by to see him after it was over. He was in the hospital and his pain from surgery (a transplanted kidney was removed because it was failing) was starting to get better. I gave Mitchell my race medal and hoped that he knew how inspiring his strength and courage is to me and everyone who knows him / his story.

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Week of Thanksgiving. Mitchell continued to recover and took his first steps in quite a while.

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He was released from the hospital on November 22nd. Things were looking up ~ maybe he’d even be home for Thanksgiving, his favorite holiday, but that reality was short-lived. He was re-admitted on November 24th and had emergency surgery due to multiple complications from the kidney being removed.

By November 30th, things started to turn around again for the better & his NG tube was removed. He had a few bites of oatmeal, a great sign that things were looking up (he had been on a liquid only diet for quite some time during this hospital stay).

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He was released from the hospital and enjoyed leftover Thanksgiving dinner, grateful to finally be home.

On December 4th, Mitchell went back to the hospital by ambulance. He was admitted into the ICU. His high blood pressure took a major toll on his body, and when we say major, we mean MAJOR. His family is keeping these details private, but it’s safe to say they were praying he’d make it through the unexpected trauma to his body and survive.

On December 5th, he woke up after 2 full days of being “asleep”, basically in a medicated state. I visited him in the ICU on that day and within an hour of arriving, he woke up. It was absolutely awesome to see him open his eyes. His sister, adorable baby nephew & Mom were by his side too. Within minutes of waking up, he asked for blue raspberry popsicles and took down one after another after another. His Mom was worried that he might get sick from consuming so many in such a short time frame, but that didn’t stop Mitchell or his pursuit for a blue tongue.

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On December 6th he was moved out of the ICU and onto the transplant floor. On December 9th, him & Mom went home.

On December 10th, his mother shared these poignant thoughts on the Save Mitchell Facebook page:

As I sit here tonight and think about the last month, I am extremely thankful for the support, love and prayers from family, friends and people that we have never met, but still keep us in their prayers. We still need lots of prayers and I know that we will get them! Today has been quite a day. We had some problems with Mitchell’s fistula this morning. He has lost so much weight and it is hard to get, needles in the right place. We got too much air in the lines first thing this morning and could not even rinse his blood back…scary!!! We set the machine back up and tried it again. (Had to stick him again) All went well until the last hour when Mitchell shifted in his chair and moved his arm too much and we got air again. This time we were able to end his treatment early and rinse his blood back. We will get it done right tomorrow! Prayers Please. As we were getting off the machine, Mike came upstairs to tell us that a large Weeping Willow Tree in our backyard fell, took out our fence and landed on neighbors back porch. Hope to get that cleaned up and fixed soon (somehow).

After all of this today, I sit here and am very grateful to have Mitchell home tonight. I honestly was not too sure last week that would happen. Tonight as we got ready to go to bed He hugged me and I know that he was thinking the same thing too. Friends, hug your children and tell them that you love them often! Never take anything for granted, I don’t! My children and grandchildren are my life and I know that I am blessed!! I know that the good Lord is at my side at all times, sometimes not the way that I would like, but still always near.
Love, Robin

On December 12th, his blood pressure was spiking, causing extreme concern that he’d have to go back to the hospital. That day, and pretty much every day since then, his blood pressure has been a big headache. It’s so important for the BP to stay under control because it can cause so many complications.

On December 17th, he went to the hospital for an appointment due to his dialysis fistula having trouble. He has lost so much weight recently, that the fistula isn’t working properly. The goal was to try and correct this problem.

Christmas week appeared to go well. He was able to attend church as well as see a movie with his family. What a treat!

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December 28th, Mitchell was short of breath, coughing and not feeling well. His Mom took him to the ER and he was ultimately admitted into the ICU. It turns out there is blood in his lungs (the cause is unknown at this time). The medical team decided to put him on a ventilator in order to let his body rest and get the oxygen he needs.

Today. December 29. This morning he spiked a fever and also has high potassium levels (likely from not having dialysis).  His Mom, as always, has not left his side.

Here is Mitchell today, wearing his bracelet. When he was wearing it a few weeks ago in the hospital, he was really scared that the hospital would cut it off while in the ER. Thankfully it’s still holding strong. Just like Mitchell. Holding strong, always.

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This guy has been fighting for his life since the age of 8. Today he is 20-years-old and still never gives up. His resilience and faith has stood the test of time. Time that should have been spent being an innocent child, time that should currently be spent attending college, dating, getting into trouble, and experiencing all that life has to offer. But instead, him and his family focus on one thing and one thing only – a miracle.

We pray that we have much more time with him, and that through grace and through God, his body will be healed.

Much love,

Mary Beth

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Dialysis or bust.

The face of dialysis.

The face of hope.

The face of strength.

The face of Mitchell Lyne.

This week Mitchell began hemodialysis at home, thanks to his devote Mother who has been training for weeks on how to perform the treatments. For the last month or more, they had been traveling to the dialysis clinic.

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Meanwhile, we are finishing up a fundraising effort for Save Mitchell t-shirts. We redesigned them so if you already own the original version, now is your chance to own a new version AND give back to our hero. $15.00 from each sales goes to help pay for his medical bills. Visit the website for more information, this campaign ends on June 20, 2013: http://www.bonfirefunds.com/fund/save-mitchell

Thanks for everyone’s continued support & prayers. Please follow along on Save Mitchell’s Facebook for daily updates.

ML

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Post-op Day 3.


I was lucky enough to spend all-day Tuesday at the hospital to support Mitchell, his family, and his donor Jessica during their transplants. The experience was surreal; I wasn’t watching Grey’s Anatomy in a flat screen TV, life was being saved in real time. Even when I worked at Johns Hopkins and walked down the hospital halls daily, I didn’t get to see behind-the-scenes happenings or truly understand what it’s like to wait, and wait, and wait for updates as the surgery took place. It was hands down one of the most moving, profound and best days of my entire life.

Since I started this blog 8 months ago, got tested twice to be a kidney donor (once to Mitchell directly & once for a kidney swap situation), launched the Save Mitchell t-shirts fundraiser, fostered a relationship with Mitchell’s mother and have been left speechless by her living Sainthood status, raising thousands of dollars due to selfless community members opening their wallets, updating his Facebook fan page on a daily basis, and hearing about the up & down roller coaster ride of his health status…to say that Tuesday was a gigantic, collective sigh of relief is putting it lightly.

The goal of being physically present was to keep his parents occupied in the morning before the immediate and extended family arrived, to personally stay updated on the surgeries progress, and to keep the social media circle informed as the day unfolded. All three were accomplished and I left 9 hours later feeling more mentally/emotionally tired than if I had been sitting at my day job desk for the exact same amount of time.

As I feel asleep Monday night, during my morning drive into VCU Medical Center on Tuesday, and the evening drive home — I wept. The tears were made from 100% natural joy. Since the day I learned of Mitchell having his transplant surgery day set in stone, gratitude keeps oozing from my pores. Mitchell receiving a transplant, all because of Jessica being impossibly humble and selfless…it all feels magical. A divine intervention if I’ve ever seen one.

I returned to the hospital today to see our brave hero on an extended lunch break. He was in much better shape than when I left him Tuesday night {which was basically incoherent & not awake, squinting in pain every few seconds}. Today he was sitting in recliner chair with bright blue lips from a hospital popsicle. Mitchell is a quiet guy and has an aura about him that feels old and wise, but those Cookie Monster blue lips immediately reminded me that he’s still a teenager with a young heart and spirit.

When I first entered the room, a lady who handles all of his medications was telling him, “This is a test. You can have *ONE* cracker and then we’ll see how it goes.” He slowly savored his very first piece of solid food, a graham cracker, and 30 minutes later asked, “So what’s next?” He’s starving after not eating for 3 days, and finally has an appetite. Next he munched on pretzels while watching a movie and dozing off every so often during my two hour visit.

What I love about the Lyne family is how absolutely hilarious they are. At one point Mitchell’s monitor was making a beeping noise and his Dad got annoyed that it kept going off {the nurse attempted to fix the problem 3 times to no avail}. Mrs. Lyne turned to him and said, “Sorry if his life support is bothering you…” and we all broke out into a deep belly laugh. Those two are quite a pair and I can tell they’ve been married for a very long time between their banter and playful interactions. Raising five kids, three of whom have suffered from tremendous health issues over the last decade — they know that when life gets rough, you have to laugh for survival.

Mitchell has had a harder time post-op this 3rd transplant than the last one. So far he’s had a few blood transfusions, a bad reaction to pain meds that caused him to be severely itchy {can you imagine having your entire abdomen sliced open and to make matters worse, you are uncontrollably itchy??}, he has air trapped in his intestines/stomach which is causing horrible nausea and vomiting, and wasn’t allowed to move for the first few days.

Fortunately today he’s feeling a little better and took a brief stroll down the floor. And the BEST news of all… is his new kidney is doing beautifully!! The organ is functioning properly, working hard to keep Mitchell alive & kickin’, and producing urine like nobody’s business.

Balloons, baskets full of candy, and well wishes are everywhere. Meals are being prepared for the family to help them next week once discharged. The love is palpable.

Meanwhile, I also got to visit with Jessica for about 15 minutes down the hall, when she was preparing paperwork to be discharged in a few short hours. I’ve only known her for a brief time now, but could definitely tell a big difference in her demeanor. In our past texts, emails, and in-person convos, she was pretty positive and energetic — whereas today she was very subdued. However despite her physical appearance being dialed back, I can tell that her spirit is stronger than ever. Also I got to see her eat solid food {her second time, first being a few pieces of cornflakes last night} — her preferred food was peanut butter crackers, yum.

We discussed how her post-op experience has been, and despite it not being pretty {including side effects from pain meds, a severe allergic reaction to Benadryl which also caused severe itching that left marks on her back, a bloody nose, nausea causing her not to eat for all 3 days in the hospital, and an increased heart rate episode}, overall her mental attitude is phenomenal. She barely even took pain medication since the operation; frankly, I think that’s insane. I’ve heard accounts of donors comparing their pain levels *higher* than giving natural birth. But Jessica? Nah. She said, “I’m not a wussy.” No, no she is not. She’s a soldier.

In fact, I watched her peer out the 9th floor transplant unit window, and smiled when she said, “If I was not on drugs right now, I wouldn’t be looking out the window. I don’t like being up high.”

Here are some more photos from today. Thanks for everyone’s continued support and encouragement.

Much love,

Mary Beth

Mitchell’s armor

Jessica’s armor

Mitchell’s life support {loved ones not pictured}

Virginia Commonwealth University Men’s Baseball Team 

Posted above Mitchell’s bed 

Jessica’s virtually untouched tray of lunch, “I tried the roll. Eh, not so much.”

Mitchell’s Mom wearing her Save Mitchell dot com shirt along with a kidney necklace pendant.

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Saving grace.

Mrs. Lyne: Mitchell is the sickest he’s ever been.

Mary Beth: Wait, you mean, even dating back 11 years…to when he was 8-years-old and needed his first kidney transplant?

Mrs. Lyne: Yes.

That dialogue practically took my breath away.

But, but…how could this be? We just saw him posing in a tuxedo, looking super sharp, for his senior prom. And then standing next to his Grand Daddy on high school graduation, smiling bright. How could he be that sick?

When his potassium and hemoglobin levels dropped last week, the poor fella had to have two blood transfusions. Blood work results came back today, and while the potassium is up a bit, he has not been able to eat *any* food. So hopefully prednisone will do the trick, help the organ inflamation go down, and ultimately help him hold solid food down.

Today was a whirlwind. As his Mother recounted the details to me, I was out of breath just listening to the story. In short, Mitchell’s team of doctors changed their mind a few times. One moment the plan would be to stay put, take the meds, and watch what happens. Another moment, he was ordered to go to the hospital “within the hour” for a possible surgery, and the next…they’re told a living kidney donor has come forward.

A sweet, selfless soul has stepped up to the plate to donate their kidney; this person doesn’t even know Mitchell but is a friend of a friend of a friend. This person doesn’t match Mitchell, so has offered to donate their kidney to a stranger on the waiting list {this is known as an altruistic donation}. By doing so, Mitchell is automatically bumped up to the #1 spot on the kidney waiting list.

This is HUGE. Really, really big news. But he won’t be completely out of the woods yet. You see, because of his complex situation, it will take a very unique kidney to be compatible with his system. Regardless though…putting him at the tippy top could literally be a life saver. A saving grace.

Another insight that put things into perspective was when Mrs. Lyne said the doctor said they’ll let him have a cadaver kidney from a deceased donor. Originally this wasn’t permitted because of Mitchell’s sensitive case {living organs last longer than cadaver organs — and the more transplants you have, the harder it is to make them successful}, but evidently because he is not doing well, the medical team’s point of view is, “we’ll do whatever we need to do to save his life.”

So please keep Mitchell in your thoughts and prayers. Send him your love and support. And as always, consider donating through a dollar, getting tested to be a kidney donor, delivering dinner to the family, or purchasing a SAVE MITCHELL t-shirt. Tomorrow is never guaranteed for any of us, so live today to the fullest.

Much love,

Mary Beth

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