save mitchell

donate a kidney, a dollar, or a prayer for hope & healing

Fundraiser for Mitchell

An awesome company, Bonfire Funds, has partnered with SaveMitchell.com to launch a fundraiser.

It’s super simple.

People purchase a t-shirt for $25; $15 goes directly to the SaveMitchell.com fund which helps offset his medical expenses. But here’s the catch…we must sell 50 shirts within 50 days. If we don’t reach that goal, then nothing happens. But if & when we do reach our goal, then everyone who placed an order will have a t-shirt shipped to them, credit card will be charged, and a total of $750.00 will be donated to Mitchell Lyne to help keep him alive!

Sure, insurance and Medicaid pay for some of the healthcare costs (while dishing out headaches)…but certainly not all of it.

And then there are the everyday costs that add up over time.

An example is the amount of paper towels & trash bags that are used up due to his dialysis treatments & cleanings. Mitchell’s Mom goes through an entire roll of PT daily, which in turn fills up an entire bag of trash. If you do the math, that is $7.49 for a 6-pack of Bounty paper towels & $5.00 for a 30-pack of trash bags, or over $35 per month.

And let’s not forget the cost of gas these days…to & from doctor’s appointments, dialysis clinic check-ins, trips to the grocery store and pharmacy to fill prescriptions. The expenses are hard for anyone to keep up with, let alone a family who has dedicated every minute of every day to keep their son alive.

So please consider paying it forward and purchase a t-shirt. And let’s be very clear…this isn’t any ol’ shirt that festivals hand out as freebees. The “Cotton Ringspun Fashion Fit Tee” is high-quality material, fits like a glove, and is super comfy. You do have the option to purchase a standard (boring) “Cotton Basic Tee” but it’s the same price so why not get the best bang for your buck donation!?

Click here & Visit the site now, time is running out.

Advertisements
Leave a comment »

Kidney Donor ~ Myth busters

Thanks to the wonders of social media, I’ve come across several informative sites & blogs dedicated to educating people on kidney donation as well as advocating for recipients waiting for a match.

The Kidney Chronicles is penned by a living kidney donor, Tom, who gave the gift of life to Brenda in 2007.

In this particular post [see below], he captured the most frequent questions from other potential donors. I found the answers not only extremely informative, but equally refreshing.

Please take a moment to read this piece, and then share with others.

“When you know better, you do better.”  -Maya Angelou

Much love,

Mary Beth

Ask The Kidney Donor

By Tom Simon

I’ve been answering a lot of email questions lately from prospective kidney donors trying to decide whether to go forward with the procedure. The same questions always seem to crop up. Here they are:
I’m thinking of donating a kidney and my friends and family are freaking out! What should I tell them?

I’m happy to answer any questions, but I don’t want you to think I’m talking you into donating. It is a very personal issue, and you should make it based upon the facts of your life.

My friend Virginia Postrel wrote a great article called: “Here’s Looking at You, Kidney: How and why I became an organ donor — and how I kept people from talking me out of it.”
http://www.dynamist.com/articles-speeches/opeds/kidney.html

Her article started me thinking about donating, and her patience with my many dumb questions helped me during my own discernment process.

Most family members’ objections boil down to:
1. Fear of the surgery 2. Fear of living with one kidney

Remind your friends and family of the following things:
The donation of a kidney is laparoscopic surgery, meaning small incision and quicker recovery. Most donors are out of the hospital on the next day, back at work in two weeks, and back to normal in a month. The surgery is no more dangerous than any procedure done under general anesthesia. The anesthesia is the real risk factor. Check out your doctor and transplant center. Get comfortable with both. Ask a lot of questions.

There is no scientific evidence in 50 years of living kidney donations that there are any ill effects to living with one kidney. Within five weeks of donation, the remaining kidney swells in size and increases its filtering power (the “glomerular filtration rate”) to match the power of two kidneys. In short, you’ll have a single super-kidney instead of two simply adequate kidneys.

When kidney disease occurs, it nearly always strikes both kidneys at the same time. It’s not like one kidney fails and you find yourself knocking on wood, thankful that you’ve got a spare. If I should develop kidney disease, I will need treatment or a transplant – just like I’d need if I had two kidneys. If a kidney donor needs a transplant, they go straight to the front of the line on the kidney transplant list, which seems like a very fair deal to me.
What about saving your kidney in case one of your kids needs it someday?
This is the best argument I’ve heard against donating. That said, I couldn’t justify not saving a life today because it might inhibit my ability to possibly save one in the future. My wife has a spare kidney for them, and we both have loving families who may be willing to help if one of my kids is in need of a kidney. Moreover, neither my family nor my wife’s has any history of kidney disease, obesity, or diabetes.
What if something happens to your remaining kidney and you end up needing your second one?
Again, my family has no history of kidney disease. When kidney disease occurs, it nearly always strikes both kidneys at the same time. It’s not like one kidney fails and you find yourself knocking on wood, thankful that you’ve got a spare. If I should develop kidney disease, I will need treatment or a transplant – just like I’d need if I had two kidneys. If a kidney donor needs a transplant, they go straight to the front of the line on the kidney transplant list, which seems like a very fair deal to me.
What if the transplant fails? It will have been a waste!
It happens. Then you will probably feel a real sadness but no regret about your ultimate decision. All you can do is all you can do. The rest is up to the doctors, God, and your recipient’s body. Blood donors don’t expect accountability and ultimate success regarding the ultimate success of their donations. Kidney donors shouldn’t expect it either.
Have you had any residual pain or a feeling as if something is “missing?”
Nope, not even a little. In fact, if this were a science-fiction thriller where I was “missing” the memory of the 6 months following surgery, I would not have known it happened at all. Except for some small scars on my abdomen (see below).
The recovery process works in stages where there is some abdominal swelling (only you and your pants will notice) and the incision points will be tender for maybe six weeks after the surgery, but nothing permanent.
I found myself rather sleepy at night for six months following the surgery (like 9:30 p.m., rather than 11:00 p.m.). I think I was still healing internally. I think that evolved into a habit where I now go to bed earlier than I once did. I don’t think this is kidney-related as much as I just became accustomed to being well-rested and getting an appropriate amount of sleep. I only mention it because I have spoken to many others who found themselves rather sleepy at night long after the pain of the surgery had gone away.
Have you had to make any significant changes in your diet and/or exercise routines?
Not really. No more knife fighting for me. I used to be an amateur boxer, but I gave that up long before my surgery. Had I continued boxing through the time of my surgery, it would have been wise for me to stop since repeated blunt trauma to the one remaining kidney could evolve into a melancholy situation.
There are some drugs synthesized in the kidneys, such as ibuprofen, that you may want to avoid as to not over-task your remaining kidney. Tylenol is fine. I still take ibuprofen once in a while because it works better.
I’ve been a strict vegetarian for nearly 20 years. In theory, I guess it would be unwise for me to start gorging on buttsteaks, become obese, and contract Type 2 Diabetes. But that would be a dumb idea anyway… A kidney donation should not affect your diet.
Will I have to give up drinking alcohol?
There are a million reasons to quit drinking, but a kidney donation is not one of them. Feel free to drink all you please. The liver takes the beating from your boozing, not the kidney.
How have your scars healed?
There are three scars. The two right beneath my left ribcage look like healed bullet holes which accentuates my gangsta image. The three inch scar along the elastic-line of my boxer shorts is generally hidden from the public. None of them are particularly unsightly. They are pinker than my skin, but I did absolutely nothing to treat them or care for them. Now that I live in Hawaii, they’re probably getting too much sun.
This may call for some airbrushing when you appear in a 2010 swimsuit calendar, but I’m certain you won’t be alone.

Have you seen any changes in your overall health?
None whatsoever. My blood-work continues to be far within the normal range, and I feel like a million bucks. Again, I want to stress, there is absolutely no difference in my health or my life before and after (pending recovery) the procedure.

What have you learned?
From a public policy perspective, I think “altruistic” donors should consider starting a kidney chain where they could save a dozen lives with their kidney, rather than just one. Here’s a great article describing how it works:
http://www.theatlantic.com/doc/200907u/kidney-donation

These were less common a few years ago when I set out to give away a kidney, and I’m overjoyed to have helped my recipient, Brenda. But for people who have no recipient in mind, kidney chain donations clearly do the most good for the most people.

Leave a comment »

The amazing kidney

Just a little bit about what the kidney’s do and how they work….. THEY ARE AMAZING!

Kidneys don’t always get the respect they deserve. Maybe, it’s because they’re relatively small. Maybe, it’s because when they’re functioning normally, we simply take them for granted. But, kidneys are truly impressive and the more you learn, the more you’ll understand why you want to help keep them healthy.

Another word for kidney is renal. You may hear your doctor talk about renal function or read materials that mention renal failure. Whenever you see or hear the word renal, you will know the subject is about kidneys.

Location and description

The kidneys are two bean-shaped organs about five-inches long, three-inches wide and one-inch thick located in your back on each side of your spine. Each kidney is about the size of a fist and weighs from four to six ounces. They are situated above your waist, with the left kidney a little higher and a little larger. The right kidney is a little lower and smaller to make room for the liver. The lower ribs protect your kidneys.

Inside the kidneys are nephrons. These are tiny units where the filtering of excess fluids and dissolved particles occurs. There are between 1.0 and 1.3 million nephrons in each kidney.

What kidneys do

Most people think their kidneys are just responsible for producing urine, but there’s a lot more to it. In addition to removing extra fluid and water from your body, kidneys:
■Filter the blood
■Balance fluid content in the body
■Produce the enzyme renin that helps control blood pressure
■Produce the hormone erythropoietin to help make red blood cells
■Activate vitamin D to maintain healthy bones
■Adjust levels of minerals and other chemicals to keep the body working properly

How kidneys do their jobs

The basic function of kidneys begins when you eat and drink. After the body takes the nutrients it needs, the extras become wastes. Some of the waste winds up in the blood and needs to be filtered out. The blood gets circulated through the body with every beat of the heart. It’s the job of the kidneys—with their millions of nephrons—to filter and clean out the blood and remove the extra fluids. The extra fluid and waste becomes urine and travels from the kidneys down the ureters to the bladder until eliminated through the urethra.

Removing waste is only one job of the kidneys. In addition to filtering, the kidneys monitor the levels of chemicals, salts and acids in the blood. Inside the nephrons are sensors that keep track of sodium, phosphorus, calcium and potassium. When levels are high, the kidneys signal to remove the excess from your blood for elimination.

Another important job of the kidneys is to monitor and regulate certain body functions. An enzyme called renin is secreted by the kidneys to control blood pressure. A hormone called erythropoietin tells the bone marrow to make red blood cells, and one called calcitriol helps to keep bones strong.

Inside the kidneys

Inside each kidney is approximately one million tiny filtering units called nephrons. Each nephron has a glomerulus and tubules. The glomerulus is a series of specialized capillary loops where water and small particles are filtered from the blood. The waste and extra fluids then travel through the tube-like structure of the tubules where several processes take place to turn those fluids into urine. The tubules lead to the collecting duct where the urine is drained into a funnel-shaped sac called the renal pelvis. Each kidney has a ureter that connects the renal pelvis to the bladder. The urine from the kidneys flows down the ureters into the bladder and is then passed out of the body through the urethra.

Summary

It is amazing when you think of everything the kidneys do for the body. It’s even more amazing that some people are born with only one kidney and it does a fine job of filtering blood, producing urine and regulating certain functions all by itself. There are situations when kidneys can no longer perform their job, which leads to kidney failure. We are fortunate, however, to live in a time when treatments such as dialysis and kidney transplant will keep the body alive after kidneys stop functioning.

Save Mitchell

If you would like to consider making the ultimate gift to Mitchell, the gift of life, please click here for information on how to get tested.

1 Comment »

Little miracles

Taking showers. Going for a run. Enjoying my favorite meal with an abundant appetite. Sleeping in my bed, in any position I choose. Going to work/school/social activities as I please. Having a comfortable full night’s rest. Hitting the gym. Fending for myself without thinking twice.

I can’t help but appreciate all of these ‘luxuries’ — also known as everyday activities — that are at my disposal. Yet, Mitchell’s current reality is far from mine.

  • He can’t hop under hot water for a full body cleanse — the catheter healing for dialysis treatments to begin soon doesn’t permit a traditional shower for one whole month.
  • Devouring a delicious dinner to his heart’s desire isn’t necessarily possible. The countless medications, procedure side effects, and unpredictability in appetite on any given day — make the basic function of eating an indefinite: TBD.
  • Slipping into an eight-hour sleep, in the comfort of his bed, is a distance memory. Instead, the sofa chair is his place of rest; usually his Mother is within arm’s reach.

Every single morning I start my prayers by thanking God for blessings — the simple ones — my five senses, my working limbs, my mental, emotional & physical health, my education and employment. Access to clean, running water.

These days, Mitchell inevitably pops into my mind at some point during the dialogue of gratitude, and I think how lucky I am to have it pretty darn easy.

As I’m slowly starting to understand the daily grind of Mitchell’s life, it forces me to reflect on how effortless it is to take common, expected ‘luxuries’ for granted.

The people closest to him never speak his name without commenting on Mitchell’s resiliency and quiet strength. “He never complains, ever” — which makes me think he isn’t human. How could someone in his condition not peep a problem? But the thing is, he is human, a very special human who accepts his uphill road with a grandiose amount of grace.

Because my Monday through Friday appears vastly easier than his, the moment his Mother mentioned how much Mitchell enjoys watching VCU {the local university} basketball games, I knew he had to attend one, stat. For one, the last game of the season was only a few days away. Additionally…he hasn’t been able to snag tickets because every single home game is sold out, due to the rise in popularity from last season’s Final Four run. Now all we needed was a little magic.

With a few strokes of the keyboard & putting a call out to the masses, a kind soul named Cindy offered to secure two tickets for the fan and a guest {by default, Mitchell’s Mom selflessly selected his Dad} — courtesy of the Associate Coach Mike Rhoades who is a friend of a friend. Then another kind soul who came across my call-for-action, Tom, stepped up to the plate with the equivalent of a big black and yellow bow.

He said, “My Mom works at the hospital transplant unit, I think she knows Mitchell. She’d like to help do something special.” Twenty-four hours later he rang my phone to announce, “She made some phone calls and arranged to have Mitchell meet the VCU basketball team before the game. We’re also getting a ball signed with the players’ signatures.” To top it off, VCU managed to get his Mom a ticket too, so now the whole family can be together.

My wish is that tonight, if even for a few minutes or a few hours, Mitchell is able to enjoy himself and not focus on his body’s fight over the last decade. He can act his age, have fun cheering on a live sports game, and make memories that he actually wants to remember.

Life is stuffed with light & love. And if you pay close enough attention, little miracles.

Much love,

Mary Beth

Leave a comment »

Going the extra mile

Mitchell had it pretty rough the last week & a half. “When it rains, it pours” was evidently the theme.

First, the surgery to have a dialysis port inserted into his abdomen was painful, as expected. But then he suffered from severe pain in his shoulder (air got in during surgery)…and the heating pad to help alleviate the discomfort ultimately caused 2nd degree burns!

Thankfully he received some medication to help heal burn inflamation, and the port wound is getting better too.

He is slated to begin receiving dialysis treatments on March 12. In the meantime, the family karts back and forth to the dialysis center every week. Once 3/12 rolls around, the Lyne’s will be trained at the center for one week… to eventually give the treatments at home.

Today was particularly hard because a relentless headache, which started yesterday, wouldn’t budge. He asked for over-the-counter medication for some relief. To give you some context, he has had about 6 Tylenol pills in his entire life. In other words, he is naturally tough and never complains. Hopefully Mitchell will feel better soon!

It didn’t even occur to me until talking to his Mom that the rising gas prices must put a huge dent on their wallets. It is 50 miles roundtrip to the dialysis center, and over 20 miles to the hospital for check-ups. Add that all together and we’re talking hundreds of dollars.

If you’d like to contribute any amount of money to help offset the expenses of commuting trip gas (rising 20 more cents per gallon by this weekend), please click here for an easy PayPal Donation. If you don’t already have a PayPal account, it’s free and simple to create one.

The Lyne family have not asked for anything other than prayers, but sometimes… going the extra mile involves giving in more ways than one. In this case ~ gasoline.

Much love,

Mary Beth

Leave a comment »

Paying it forward

Mitchell had an operation on Monday to have a port inserted into his abdomen. He will begin dialysis in the next 2-4 weeks, depending on how quickly the wound heals.

If that alone isn’t tough enough, he inadvertently had even more complications to endure — air got trapped during surgery which caused severe pain in his shoulder. Then… a heating pad to help with the pain ended up burning him.

His guardian angel on earth, also known as his Mother, took Mitchell to the ER and we’re thrilled to share that he is finally feeling better today. It should take 2-3 weeks, with wound care, for the burns to heal.

 ∞

Meanwhile, there is an incredible story of selfless donor heros in this Sunday’s New York Times newspaper. Sixty people and 30 kidneys are all linked through the gift of life.

“It is considered a quirk of evolution that humans have two kidneys when they need only one to filter waste and remove excess fluid from the body. Yet when kidneys fail, whether from diabetes or high blood pressure or genetic disorders, they tend to fail in tandem.

Death can arrive in a matter of weeks for many renal patients if they do not have their blood cleansed through dialysis. The process takes almost four hours, three times a week, and leaves many too drained to work. Only half of dialysis patients survive more than three years.”

This isn’t Mitchell’s first rodeo; he has experienced dialysis before. If there could be a silver lining uncovered in this difficult circumstance, it would be that his family will be trained to give treatments at home. The ability to stay in and not have to travel back & forth to the hospital several times a week is an invaluable gift of time.

He didn’t respond well to hemodialysis in the past.

So this time he will receive PD {peritoneal dialysis}.

In the spirit of paying it forward, if you would like to do so for the Lyne family, there are several options:

  • Contact the MCV organ swap coordinator and get tested as a kidney donor for Mitchell. Click here for more information.
  • Make a monetary donation to help offset the extraordinary amount of medications, many of which are not covered by insurance. Click here for more information.
  • Volunteer to make homemade dinners or have takeout meals delivered to the Lyne residence. Email marybeththomsen@hotmail.com for more information on coordinating & scheduling dates.

Much love,

Mary Beth

1 Comment »

Unanswered prayers

After almost 3 weeks of chasing my tail in circles, because no lab would take my blood and let me ship it myself, I finally had blood drawn today to see if the recipient matches with me. Now the vials are in an overnight package and will be crossmatched tomorrow in Richmond, VA. As I sealed the boxes, I also sealed my faith.

It’s in Your hands now, God. Ok well technically they’re in a FedEx delivery personnel’s hands, but you know what I mean.”

In case you missed the first post in this blog, I’m referring to kidney swaps and exchanges, where donor/recipient pairs will trade organs. For example, Donor 1 is unable to donate to Recipient 1, so he can donate to Recipient 2 (which in this case is Mitchell). Recipient 2’s donor (which in this case could potentially be me) would then donate to Recipient 1 (unfortunately I don’t know her name, but have an image in my head of what she looks like ~ similar to when reading a book and visualizing the character’s face). This criss cross exchange is a very effective way of managing incompatible donors and recipients.

I went through the same testing process with Mitchell’s blood last spring, but apparently our antigens wouldn’t get along — how rude, right? Which is really ashame since the doctors initially thought our cells would play well together in the sandbox operating room.

His Mother was also tested recently.

I have a deformed kidney and have never been tested for Mitchell because of that reason. Dr King decided last week to test anyway. My Dad said that it may be God’s plan for me to be the donor and that my kidney may be fine!”

The thought of this becoming a reality really touched my heart, and I wished that her father would be spot on in his prediction. Unfortunately though, they were not a match afterall.

I’m not a scientist, far from it actually — calculators are needed for simple math equations. I also know very little about the technical compatibility requirements of organ transplants, but it’s hard to understand why someone’s own Mother — the person who helped conceive him, the person who welcomed him into this world through labor, the person who literally shares his DNA — couldn’t save her son.

But instead of trying to comprehend or make sense of something that ‘is what it is’ — I accept it and believe in the depths of my soul that there is a bigger reason behind it all. Perhaps his Mother needs the energy and focus to care for Mitchell, and undergoing major surgery would put her own health at risk. Perhaps there is another candidate who can withstand the transplant, allowing her to be a superhero to her son with time, attention, and uninterrupted TLC.

This makes me think of the song by Garth Brooks:

Sometimes I thank God for unanswered prayers

Remember when you’re talkin’ to the man upstairs

That just because he doesn’t answer doesn’t mean he don’t care

Some of God’s greatest gifts are unanswered prayers.

I’m not a Mother and can only imagine what it must be like for her to watch Mitchell suffer for over a decade. Despite the long road travelled and tears shed along the way, we hold onto hope. We hold onto faith. We hold onto miracles. We hold onto each other.

And, we even believe in unanswered prayers.

Leave a comment »

Benevolence

| be·nev·o·lence |

noun

1. desire to do good to others; goodwill; charitableness: to be filled with benevolence toward one’s fellow creatures.
2. an act of kindness; a charitable gift.

I scrolled through 120 blog themes in an attempt to visually portray the purpose of this platform — to save Mitchell Lyne. More on this warrior to be reckoned with in upcoming posts.

One blog theme was titled: Benevolence. Although it isn’t the design I ultimately chose, the word’s meaning seeped into my pours. You see, I’m part of a human species that has no choice but to help others in need. That attribute is solely derived from God. He made me this way and I own it, for better or for worse.

I am what some might call a spiritual person. Yes I was raised Christian and this denomination makes up the majority of my faith’s DNA, but my heart most resonates with practicing The Golden Rule {treat others how you would like to be treated}. As the Dalai Lama said, “My religion is simple. My religion is kindness.”

In 2001, my college days in Richmond, Virginia were coming to a close and graduation day was fast approaching. However a sorority sister, Stacey, had much more on her plate than job interviews and finals. Stacey donated a kidney to her younger brother, Mitchell. He was only 8-years-old at the time. Our sisterhood chapter organized fundraisers for their family and rallied around in support. To the best of my knowledge, the surgery was a success and everyone would live happily ever after.
Time passed and the social media network Facebook exploded, which essentially fosters online reunions and put me back in touch with Stacey. I would have categorized her in the ‘acquaintances’ folder. We were friendly in passing & saw each other at mutual friends’ bridal/baby showers. Then to my surprise, a few years ago, her status update said that Mitchell needed a new kidney. By the time I learned my blood type after donating a pint to the Red Cross, A Positive – a compatible type, another donor had come forward and matched Mitchell. I silently decided to get tested, but never had the opportunity.

Once again, I figured the organ’s new home was safe & sound. The end.

But everything wasn’t OK. I didn’t understand why exactly, but felt terrible for his family and for the young boy who endured so many scalpels before graduating high school.

Last spring, without telling anyone except for Stacey and a few close friends, I went to the hospital to see if I could help. God told me to. Not in a whisper, not as a subtle suggestion, nor as a possible consideration. Nope — it was an adamant directive. My heart was heavy with His call-to-action and there was no ignoring, or, questioning it. Others would later ask, “But, but, you don’t even know him?” “But, but, you aren’t even that close with Stacey?” “But, but….what if ___?” On the drive over to the hospital lab that morning, I prayed, hard. I asked God to help navigate this somewhat scary and unknown world of kidney donations.

“I leave this outcome entirely in Your hands. If this is meant to be, You will see to it that I’m a match. Selflishly, Lord, I kinda don’t want to match, because then that would mean I have to actually deal with a surgery…and who knows what else. But seriously, I trust You — I do, and will handle the outcome however this plays out. Amen.”
A few days later the donor coordinator called and said, “The doctors can’t believe it, you appear to be a match! They’re scratching their heads at how close the results were.” She continued, “The criteria for matches is very strict since we’re being extra picky this (third) time. You need to come back and have more blood work drawn, we’ll now literally crossmatch your bloods on top of each other and see how they react.”

I knew it, I just knew it. God had a plan after all and I’m glad I was quiet enough to listen to, and hear Him.

After my second batch of testing, the coordinator’s next call wasn’t as positive as the first. Our bloods didn’t like each other after all. I was extremely confused, totally dumbfounded.

“How could this be? God, what was this all for? You put it on my heart to get tested, remember?”
I could have sworn that it was written, as they say, that I was meant to be a match. Ultimately I rationalized that my involvement was to help the family know that there are people out there willing to help, and keep their hope alive.

The experience also became an exercise for my boyfriend and I to have very serious discussions about us, our future, and practice clear communication about delicate subjects.

Nine months passed and I eventually moved cities, started working for Johns Hopkins Medicine on their marketing team, and thought the Mitchell files were closed. But then a few short weeks after relocating, my phone rang. It was the hospital coordinator asking if I was still interested in donating. “It’s a kidney swap situation. Another person in need of a kidney has a loved one who matches with Mitchell. Now we need to find a kidney for that person.”

My head was shaking — this was it. God wanted me to help save two lives, not just one. Ok, I get it now.

In the meantime, before receiving the kidney swap scenario call, I learned a tremendous amount of clinical information on the kidney, living donations, the surgery, and long-term impacts on a living donor {which are basically none, people can live a normal, full lifespan with only one kidney}. As fate would have it, one of my service lines at Hopkins is….the transplant department. The first project assigned to me had to do with incompatible transplant from living donors.

Really? Come on. As they say, God certainly has a sense of humor.

I was also intimately familiar with kidney swaps because as it turns out, Hopkins is the first hospital that performed a “domino” tranplant – six people to be exact – and I had just watched a video about it the very same week.

Today, February 13, Mitchell was wheeled into the OR to have a port placed in his abdomen. He needs to start dialysis. This is such a blessing and such a curse. The treatment keeps him alive and that is magnificent. But the curse is that it means he doesn’t have the kidney swap in place to proceed with a transplant.

On Wednesday I’m going to the Hopkins testing lab to have blood drawn and see if I match with the recipient-in-waiting down in central Virginia. I don’t know much about her except for the fact she’s in her twenties, has never had a transplant, is also on dialysis, and has someone who loves her enough to give up his/her kidney to a stranger — Mitchell. If I’m not a match for her, then this web site is my second best gift ~ a place to advocate and give him and his family a voice.

Please keep these two courageous souls in your thoughts and prayers as they wait and hold onto hope.

This online community is a place to champion for and support Mitchell. We’ll share stories about his life, his fight, his progress, and hopefully, his new kidney. Oh – and – in case you’re interested, the name of this blog design is Brand New Day…which is what I hope Mitchell will be granted for many years to come.

Much love,
Mary Beth

1 Comment »