Today is Mitchell’s birthday. He’s been alive for 20 meaningful years. He’s been fighting for his life for the last 12 of those years.
This blog has been neglected since December as the Facebook page has become the primary portal for Save Mitchell weekly updates, but today it felt fitting to post a thoughtful update here.
The winter wasn’t easy. Since the New Year, the road to a new life with a new kidney took a major detour. Mitchell’s 3rd transplanted organ that he received in August 2012 was put in jeopardy due to a variety of medical setbacks. He was admitted to the hospital for over two weeks in January, and during that time period, contracted the CMV virus which can be fatal. To nurse him back to health, the kidney was compromised because anti-rejection medications were lowered in order to treat the CMV virus. Because of everything he’s been through over the years, his immune system isn’t strong so is susceptible to getting sick pretty easily.
On April 10th, news broke that the kidney was officially lost. Fifteen days later, on April 25th, he started dialysis in order to keep him alive.
Dialysis is a double-edge sword for people who are in end stage renal failure. It’s significantly lowers the quality of life as we know it. People spend hours & hours hooked up to machines going through the monotonous routine, then the next day they recover and by the time they start to feel a bit better, they go through the process all over again. Some people receive treatments every single day, which will be Mitchell’s future beginning in the next few months once a permanent Fistula is implanted in his arm. On the other hand, dialysis is literally keeping him with us and that is arguably the most beautiful gift we could ever ask for. Life.
He wants to keep living. Everyone who knows Mitchell wants him to keep living. People who don’t personally know Mitchell want him to keep living. He has touched people through his resiliency, courage and quiet strength. It is safe to say that anyone who crosses his path could learn something and be inspired to keep fighting whatever battle faces them.
Today, we celebrate him. The person who chooses every single day to open his eyes. To get dressed. To go through the motions of taking dozens of medical pills, fighting through physical pain, and believing that someday, somehow, things will get better.
Can he have a fourth kidney transplant? Time will tell, but that isn’t on the radar right now. Will he have the opportunity to be a part of research, stem cell developments, or medical miracles in America or elsewhere? Time will tell, but that is on the back burner right now.
What we do know for sure, right now, is that Love Wins.
His Mother has never left his side, as the unofficial nurse with an honorary RN degree, and sacrifices working/income…much less a good night’s sleep…to care for her son day and night. Mitchell’s Father, siblings, grandparents, and extended family and friends support him, encourage him, and hold onto hope.
The medical bills continue to pile up at warp speed, expensive gas to travel round trip on the 50 mile drive for dialysis clinic visits 3 times a week for 4 hours at a time, a neglected house that needs various maintenance work but time and money has kept that from becoming a reality. The list of burdens goes on and on and on.
But ya know what? Their incredible faith is what keeps them hanging on. Some days are brighter than others, but behind it all is a deep belief, a steadfast conviction that everything will be OK.
Happy birthday Buddy.